Consistency

My theme for April is consistency.  Ironically, I really, really struggled with consistency throughout the whole month.  Pain, illness and depression really kicked my bottom and I didn’t even write my quotes on a daily basis and had to do a big catch-up at the end of the month.

I think that just goes to show how hard consistency is for the chronically ill.  Consistency is so important in developing habits, building fitness, creating a reputation as a reliable person, even constantly practising self-care – all things that are just that much harder when you have an unpredictable and uncontrollable illness.  However, consistently trying is still important.  And there are other things we can practice consistently – kindness, courtesy, positivity, etc.  It’s really important to remember that our consistent things don’t have to be big – small things done consistently are more important than doing occasional big things in terms of building good habits and good health (insofar as is possible).

As always, I may not agree with every single aspect of these quotes, but by and large I think they have important things to say.

My apologies for the amount of unattributed quotes.  Not a lot of people have cool things to say about consistency, apparently.

If you are wondering about the post image, that was what came up when I typed “keep trying” into a stock image generator, so that’s what we’ve got.

  1. “We become what we want to be by consistently being what we want to become each day.”  – Richard G Scott
  2. “Consistent action creates consistent results.” – Christine Kane
  3. “We all have to start somewhere, and doing something is better than doing nothing at all.  Start small so you don’t get discouraged and give up.  Remember it is all about consistency.”  – Khloe Kardashian
  4. “Relationships feed on credibility, honesty and consistency.” – Scott Borchetta
  5. “True consistency, that of the prudent and wise, is to act in conformity with circumstances and not to act always in the same way under a change of circumstances.” – John C Colhoun
  6. “When you’re so consistent, people have to stand up and take notice.  I don’t think people recognise or praise consistency enough.” – Katie Taylor
  7. “For me, integrity is the consistency of words and actions.” – Kenneth Chenault
  8. “I pray to be like the ocean, with soft currents, maybe waves at times.  More and more, I want the consistency rather than the highs and lows.” – Drew Barrymore
  9. “Like anything worth doing in life, happiness takes time and patience and consistency.” – Mark Manson
  10. “I think what children need is love, security, stability, consistency, and kindness.” – Rosie O’Donnell
  11. “A jug fills drop by drop.” – Buddha
  12. “”Quality is appreciated.  Consistency is honoured.  Consistency in quality is loved.” – Amal Gade
  13. “Trust is built with consistency.” – Lincoln Chafee
  14. “Long-term consistency trumps short-term intensity.” – Bruce Lee
  15. “Small disciplines repeated with consistency every day lead to great achievements gained slowly over time.” – John Maxwell
  16. “Motivation is what gets you started.  Habit is what keeps you going.” – Unknown
  17. “Extremes are easy.  Strive for balance.” – Colin Wright
  18. “You will never change your life until you change something you do daily.  The secret of your success is found in your daily routine.” – John C Maxwell
  19. “Consistency is harder when no one is clapping for you.  You must clap for yourself during those times.  You should always be your biggest fan.”  – Unknown
  20. “I didn’t come this far to only come this far.” – Mick Kremling (possibly)
  21. “Don’t stop until you’re proud.” – Unknown
  22. “Always be persistent in your pursuits.  Consistency shows value in whatever you’re after.” – overlyxclusive
  23. “By being consistent with your efforts, you will find that things will start to change in what will appear to be subtle ways because we are less likely to take notice of things when they no longer challenge us.” – Jenny Stanley-Matthews
  24. “Your intuitive sense of what feels right or doesn’t feel right will remain consistent for a longer period of time and will far outlast the consistency of your emotional feelings.” – Sidney C Walker
  25. “don’t expect immediate recognition after you have made positive changes.  There has to be consistency in your behaviour and performance over time.  Don’t think that by reading a book and changing some of your behaviours that tomorrow will bring you recognition or a promotion.” – Catherine Pulsifer
  26. “The body loves routine.  Try to eat, sleep, and so on at the same times every day in order for the body to function at its optimum efficiency.  The body loves consistency.” – Theresa Hearn Haynes
  27. “Strive for progress, not perfection.” – Unknown
  28. “If you do what you’ve always done, you’ll get what you’ve always gotten.” – Anthony Robbins
  29. “Compromise, communication and consistency are needed in all relationships, not just romantic ones.” – Alex Elle
  30. “If you are persistent, you will get it.  If you are consistent, you will keep it.” – Unknown

So, that’s another month of quotes for you.  May is going to be all about persistence, which sounds like the same thing but isn’t.  Hope you’ll stick around to read all about it.

More Quotable Quotes

A while ago I did a post on 10 quotes that really summed up some of the experiences we have with endometriosis/chronic illness.  Recently, a lot of similar quotes have been popping up in my Pinterest feed, so I thought this might be a good time to do another one of those posts.

1)  “When I finally find a pain-free position…but then I have to pee.”  

All the damn time!

The quote is superimposed on an image of James Van Der Beek ugly-crying.

This one doesn’t really need an explanation, but boy, is it true (and frustrating).

2)  “Fake it til you make it doesn’t work with chronic illness”

MS, Fibro, Lupus, and the list goes on and on.... Chronic Debilitating Painful Illnesses

Image is a tumblr post by thatchronicfeeling.  It reads:

“‘Fake it till you make it’ dosen’t work with chronic illness.

Instead, the options are:

‘Fake it till you are so ill you can’t get out of bed’

‘Fake it till you have a flare’

‘Fake it till you have a flare, continue to fake it till you’re hospitalised’

OR

‘Accept that you have one or more chronic illnesses, adapt accordingly and look after yourself.'”  

I suspect most of us are guilty of trying to fake it til we make it far too many times, largely because there are enormous societal and economic pressures to do so, even though we know it doesn’t work and isn’t conducive to long-term health.

3) The Most Annoying Thing

Indeed, I still try though. Now and then, PIZZA!!!

Image reads: “The thing that kills me about chronic illness is that you can do everything right and still be sick.  You can be on the best medications, eat the best food, exercise seven days a week, sleep eight hours every night, and still be sick.  You can follow every rule, do everything your [sic] supposed to, and still be sick.”

You’re telling me.  I flew halfway around the planet to get the best surgery currently available only to discover I have another underlying condition that the surgery can’t treat.  I sleep ten or twelve hours some days and I’m still fatigued beyond enduring.

On the other hand, I did go to my Bangladeshi friend’s house the other night and eat all the high-FODMAP food, but honestly, if you could taste her mum’s dahl, you’d eat it if it killed you.

4) Of Mice and Men

Quote, 'Of Mice and Men'

Image is a quote from Of Mice and Men: “It’s just a constant battle: me against my body; my passions and my dreams and what I want to do with my life, against what I’m physically able to do.”

This really hits home.  As I write I’m supposed to be at beautiful Pearl Beach catching up with a dear friend whom I don’t see nearly enough.  Instead, I’m at home in my pjs because I couldn’t handle the journey.

5) I want to be enough

Chronically ill person

Image reads: As a chronically ill person, I don’t want to be told I can do anything if I put my mind to it.  I want to know that what I can do is enough.”

Absolutely.  It doesn’t matter how determined I am to be a prima ballerina when I can barely make it to the gym twice a week through fatigue and pain.  Rather than being told “you can do anything!”, which kind of rubs it in our faces that we can’t, tell us that we are doing really well as we are (because we are).  

6) Surprise!

Funny because it’s true

Meme of a cat face on a background partitioned into six shades of blue.  Texts reads:

“Me: so what are we going to do with my life?

Body: It’s a surprise!”

It sure it, body.  It sure is.

7)  Waste of spoons

Said every person who is chronically ill.

Image reads: Why waste spoons on shaving your legs?

I’ve had many a day in between laser sessions where I have thrown out my skirt or dress plans in favour of trousers because shaving requires far, far too many spoons.

If you can’t bear the sensation of leg hair want to know more about removal options, have a squiz at this post where I evaluate the pros and cons of a few different choices.

8) Competing Desires

yes

Image reads: I am a person who wants to do a lot of things trapped in a body of a person who wants to sleep a lot.

Never a truer word was said.

9) A Fully Functioning Body

Image result for funny chronic illness memes

Image is a tumblr post by thefairiegirl.  It is a picture of a shocked lego-person in glasses with the text:

“When I see someone with a fully functioning body:”

and the lego person says, “I’ve always wanted one of those.”

Wouldn’t it be nice?

10) Fatigue

"You don't know what fatigue is until you've had to rest after taking a shower." Life with chronic illness. Fibromyalgia, Chronic Fatigue Syndrome, Myalgic Encephalomyelitis, Lyme Disease.

Image is from someecards.  A vintage image of a lady in a bathtub on a blue background, with text that reads: “You don’t know what fatigue is until you’ve had to rest after taking a shower.”

I mostly take baths now for that exact reason, and I still have to rest afterwards.

What quote resonates with you the most?

If you enjoyed this post and want to see more of these quotes, follow me at https://www.pinterest.com.au/bubblesinthebrain/ and look for my Endometriosis board.

Kindness Quotes

This post is spectacularly late!  I’m sorry for the long gap between posts – I’ve been really struggling with sickness and pain management recently and it has left me with no spoons for writing.  I’ve been struggling with trying to get the balance of my latest medication (Prostap) right, and have had my tentative diagnosis of adenomyosis confirmed by MRI.  I have a lot of half-finished drafts sitting there, but I’m going to kick things off with my collation of daily quotes that I used during March.

Kindness is a big theme in my life – not because I always manage it, but because I always want to be kinder than I am.  There are so many things to be kind to in this world – yourself, other people, animals, the planet, people you love and people you hate.  To me it is vitally important.  My biggest failing in trying to achieve kindness is my tendency to gossip.  Sure, I’m not criticising someone to their face so arguably it can’t hurt them, but I think being kind in that kind of consequence-free environment is a far greater mark of character than refraining from being unkind to people face-to-face, where the fear of repercussions is greater.  Also, do unto others, etc.  I’m working on it, but I still find myself doing it a lot.

I also really suck at being kind to myself sometimes – don’t we all – and that’s an area I’m doing my darndest to work on.  As part of that, I’ve recently joined a gym (Fernwood finally seduced me with their persistence and a good deal on price) and am having some PT sessions to get my body back on track without hurting myself (or at least, without hurting my endo.  My muscles hate me right now).

I want to preface this by saying that I don’t agree without reservation with all of the quotes here, but generally speaking I think they all have a good message, and that some are incredibly important to remember.

Now, without further rambling:

  1. “No act of kindness, no matter how small, is ever wasted.”  – Aesop
  2. “For beautiful eyes, look for the good in others; for beautiful lips, speak only words of kindness; and for poise, walk with the knowledge that you are never alone.”  – Audrey Hepburn
  3. “Kindness in words creates confidence.  Kindness in thinking creates profoundness.  Kindness in giving creates love.”  – Lao Tzu
  4. “Goodness is about character – integrity, honesty, kindness, generosity, moral courage, and the like.  More than anything else, it is about how we treat other people.”  – Dennis Prager
  5. “A tree is known by its fruit; a man by his deeds.  A good deed is never lost; he who sows courtesy reaps friendship, and he who plants kindness gathers love.”  – Saint Basil
  6. “You cannot do a kindness too soon, for you never know how soon it will be too late.”  – Ralph Waldo Emerson
  7. “I’ve been searching for a way to heal myself, and I’ve found that kindness is the best way.”  – Lady Gaga
  8. “Love and kindness are never wasted.  They always make a difference.  They bless the one who receives them, and they bless you, the giver.”  – Barbara De Angelis
  9. “You can tell by the kindness of a dog how a human should behave.”  – Captain Beefheart
  10. “Contact kindness can accomplish much.  As the sun makes ice melt, kindness causes misunderstanding, mistrust, and hostility to evaporate.”  – Albert Schweitzer
  11. “Just imagine how different the world could be if we all spoke to everyone with respect and kindness.”  – Holly Branson
  12. “I have learned silence from the talkative, toleration from the intolerant, and kindness from the unkind; yet, strange, I am ungrateful to these teachers.”  – Khalil Gibran.
  13. “Kindness is in our power, even when fondness is not.”  – Samuel Johnson
  14. “Kindness is more important than wisdom, and the recognition of this is the beginning of wisdom.”  – Theodore Isaac Rubin
  15. “Guard well within yourself that treasure, kindness. Know how to give without hesitation, how to lose without regret, how to acquire without meanness.”  – George Sand
  16. “I make mistakes daily, letting generalisations creep into my thoughts and negatively effect my behaviour.  These mistakes have taught me that the first step to successfully choosing kindness is being more mindful about it, letting go of impatience and intolerance along the way.”  – Daniel Lubetzky
  17. “The true greatness of a person, in my view, is evident in the way he or she treats those with whom courtesy and kindness are not required.”  – Joseph B Wirthlin
  18. “Human kindness have never weakened the stamina or softened the fibre of a free people.  A nation does not have to be cruel to be tough.”  – Franklin D Roosevelt
  19. “Transparency, honesty, kindness, good stewardship, even humour, work in business at all times.”  – Humphry Davy
  20. “The man who practices unselfishness, who is genuinely interested in the welfare of others, who feels it is a privilege to have the power to do a fellow creature a kindness – even though polished manners and a gracious presence may be absent – will be an elevating influence wherever he goes.”  – Orison Swett Marden
  21. “Wherever there is a human being, there is an opportunity for kindness.”  – Lucius Annaeus Seneca
  22. “Treat everyone with respect and kindness.  Period.  No exceptions.”  – Kiana Tom
  23. “Every minute of every hour of every day you are making the world, just as you are making yourself, and you may as well do it with generosity and kindness and style.”  – Rebecca Solnit
  24. “The best portion of a good man’s life is his little, nameless, unremembered acts of kindness and of love.”  – William Wordsworth
  25. “You will never have a completely bad day if you show kindness at least once.”  – Greg Henry Quin
  26. “Do things for people not because of who they are or what they do in return, but because of who you are.”  – Harold S Kushner
  27. “Unexpected kindness is the most powerful, least costly, and most underrated agent of human change.”  – Bob Kerney
  28. “Strong people don’t put others down…they lift them up.”  – Michael P Watson
  29. “A candle loses nothing by lighting another candle.”  – James Keller
  30. “Do not let kindness and truth leave you.  Tie them around your neck as a reminder; write them deep within your heart.”  – Proverbs 3:3
  31. “Consistent acts of kindness trump random acts of kindness.”  – Anonymous

How have you tried to be kind to yourself or others this month?  What about going forward?  Let me know in the comments.

 

Courage, Dear Heart

William Tecumseh Sherman (a general in the American Civil War, among other things), described courage as “a perfect sensibility of the measure of danger, and a mental willingness to endure it.”  I think that’s a good, if slightly narrow definition, as it takes courage to face hardship, humiliation and pain just as much as danger.  Either way, it’s a quality vital to the chronically ill.  It takes courage to live every day with discomfort and sickness.  That’s why it was my theme for February.  Below are all the quotes I’ve written in my journal this month.  My journal also helpfully inserted on of it’s own: “Life shrinks or expands in proportion with one’s courage” – Anais Nin.

I chose courage as the theme for February because I think we really start to need it now.  The first rush of hope that comes with the new year has faded and we are faced with the reality of life going on, as it does.  It can be a painful come-down from January, and I find myself needing a little bit of courage to push through it.

As with January and its theme of “hope“, I’ve tried for a range of quotes that capture a lot of different aspects of courage – what it means, how you get it, what it does, why it is important, and what things require it.

If you are wondering why the picture for this article is a handsome little black and white mouse on a luxurious red mouse-sofa, it is because that is my dear departed mouselet Napoleon, whose namesake was, whilst unfortunately French, undeniably brave.  My little mousey Napoleon was also extremely brave, and though trying to take on my rats (at least ten times his size, in one case) was a perfectly reasonable move.  He never actually managed to get them, and instead lived a life of luxury, got quite chubby, and died at the ripe old age of two and a half.  He was adorable and I loved him.

Anyway.  Courage.

  1. “Courage is rightly esteemed the first of human qualities…because it is the quality which guarantees all others.”  – Winston Churchill
  2. “It requires more courage to suffer than to die.” – Napoleon Bonaparte
  3. “Being deeply loved by someone gives you strength, while loving someone deeply gives you courage.” – Lao Tzu
  4. “Success is not final, fear is not fatal; it is the courage to continue that counts.” – Winston Churchill
  5. “You gain strength, courage and confidence by every experience in which you really stop to look fear in the face.   You are able to say to yourself, ‘I lived through this horror.  I can take the next thing that comes along.'” – Eleanor Roosevelt
  6. “Courage, sacrifice, determination, commitment, toughness, heart, talent, guts.  That’s what little girls are made of.” – Bethany Hamilton
  7. “Mistakes are always forgivable, if one has the courage to admit them.” – Bruce Lee
  8. “We don’t develop courage by being happy every day.  We develop it by surviving difficult times and challenging adversity.” – Barbara de Angelis
  9. “Courage is what it takes to stand up and speak; courage is also what is takes to sit down and listen.” – Winston Churchill
  10. “It takes courage to grow up and become who you really are.” – e e cummings
  11. “God grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference.” – Reinhold Niebuhr
  12. “Efforts and courage are not enough with purpose and direction.” – John F Kennedy
  13. “Courage is grace under pressure.” – Ernest Hemingway
  14. “The greatest test of courage on earth is to bear defeat without losing heart.” – Robert Green Ingersoll
  15. “Only those who will risk going too far can possibly find out how far one can go.” – T. S. Eliot
  16. “One isn’t necessarily born with courage, but one is born with potential.  Without courage, we cannot practice any other virtue with consistency.  We can’t be kind, true, merciful, generous or honest.” – Maya Angelou
  17. “Have the courage to say no.  Have the courage to face the truth.  Do the right thing because it is right.  These are the magic keys to living your life with integrity.” – W. Clement Stone
  18. “From caring comes courage.” – Lao Tzu
  19. “Courage is contagious.  When a brave man takes a stand, the spines of others are often stiffened.” – Billy Graham
  20. “The truth is: belonging starts with self-acceptance.  Your level of belonging, in fact, can never be greater than your level of self-acceptance, because believing that you’re enough is what gives you the courage to be authentic, vulnerable and imperfect.” – Brene Brown
  21. “It took me realising that a broken heart has never actually killed anyone to find the courage to ask for what I want, in just about ever situation.  That was part of my own growing up.” – Ginnifer Goodwin
  22. “Courage is not simply one of the virtues, but the form of every virtue at the testing point.” – C. S. Lewis
  23. “Amongst the qualities a hero should have, I would include determination, loyalty, courage, perseverance, patience, focus, intrepidity, and selflessness.” – Ricky Martin
  24. “I believe that my worth is not measured by what I do, by the honours that are bestowed upon me, or by material wealth that I might obtain.  Instead, I am measured by the courage I show while standing for my beliefs, by the dedication I exhibit to ensure my word is good, and the resolve I undertake to establish my actions and deeds as honourable.” – Burgess Owens
  25. “Courageous people do not fear forgiving, for the sake of peace.” – Nelson Mandela
  26. “Daring to set boundaries is about having the courage to love ourselves, even when we risk disappointing others.” – Brene Brown
  27. “God grant me the courage not to give up what I think is right even though I think it is hopeless.” – Chester W. Nimitz
  28. “Have courage and be kind.” – Cinderella

The hardest part about this list is keeping it to just 28.  There are so many things to be said on this theme.  Do you have a favourite?

Stay brave, my friends.  Come back next month for March’s theme: kindness.

A Collation of Hope

Early in January I talked about a number of quotes about hope that I’d been writing down.  It’s a practice I’ve continued throughout January and intend to keep up all year with various themes that seem applicable and relevant to my life.  Next month will be courage.

This isn’t really a proper post so much as a list, but I thought I’d put all 31 of my quotes for the month here in case anyone needed some inspiration.  For completeness sake I will also include the quotes from my last post.  I won’t explain my thoughts on them all this time: this is just for reference in case you need a quick little soundbite of hope.

All of these quotes represent, to me, an important aspect of hope.  Hope warms, it empowers, it pushes you on.  It is really hard to do.  It can spark revolutions or just make a hard day a little easier.  It is something we have the power to share.

  1. “I hope that in this year to come, you make mistakes. Because if you are making mistakes, then you are making new things, trying new things, learning, living, pushing yourself, changing yourself, changing your world. You’re doing things you’ve never done before, and more importantly, you’re doing something.” – Neil Gaiman
  2. “Hope smiles from the threshold of the year to come, whispering, “it will be better.”” – Alfred, Lord Tennyson
  3. ““Hope” is the thing with feathers –
    That perches in the soul –
    And sings the tune without the words –
    And never stops – at all –

    And sweetest – in the Gale – is heard –
    And sore must be the storm –
    That could abash the little Bird
    That kept so many warm –

    I’ve heard it in the chillest land –
    And on the strangest Sea –
    Yet – never – in Extremity,
    It asked a crumb – of me.”
    – Emily Dickinson

  4. “Hope is being able to see that there is light despite all of the darkness.”  – Desmond Tutu

  5. “We must accept finite disappointment, but never lose infinite hope.”  – Martin Luther King Jr.

  6. “There never was a night or a problem that could defeat sunrise or hope.”  – Bernard Williams
  7. “Though hope is frail, it’s hard to kill.”  – When You Believe, The Prince of Egypt
  8. “Optimism is the faith that leads to achievement.  Nothing can be done without hope and confidence.”  – Helen Keller
  9. “Fairytales are more than true – not because they tell us dragons exist, but because they tell tell us dragons can be defeated.”  – Neil Gaiman, misquoting C K Chesterton
  10. “I believe that imagination is stronger than knowledge.  That myth is more potent than history.   That dreams are more powerful than facts.  That hope always triumphs over experience.  That laughter is the only cure for grief.  And I believe that love is stronger than death.” – Robert Fulghum
  11. “While there is life, there is hope.”  – Marcus Tullius Cicero
  12. “I don’t think of all the misery, but of the beauty that still remains.”  – Anne Frank
  13. “Everything that is done in this world is done by hope.” – Martin Luther
  14. “We must free ourselves of the hope that the seas will ever rest.  We must learn to sail in high winds.” – Aristotle Onassis
  15. “There is nothing like a dream to create the future.” – Victor Hugo
  16. “Carve a tunnel of hope through the dark mountain of disappointment.”  – Martin Luther King Jr.
  17. “Hope means hoping when things are hopeless, or it is no virtue at all…As long as matters are really hopeful, hope is mere flattery or platitude; it is only when everything is hopeless that hope begins to be a strength.”  – C K Chesterton
  18. “Far away there in the sunshine are my highest aspirations.  I may not reach them, but I can look up and see their beauty, believe in them, and try to follow them.” – Louisa May Alcott
  19. “May your choices reflect your hopes, not your fears.” – Nelson Mandela
  20. “I dwell in possibility.” – Emily Dickinson
  21. “When I’m stuck with a day that’s grey and lonely, I just stick out my chin and grin and say: the sun’ll come out tomorrow, so you’ve got to hang on til tomorrow, come what may!  Tomorrow, tomorrow, I love ya, tomorrow, you’re always a day away.”  – Annie
  22. “Hope is passion for what is possible.” – Soren Kierkegaard
  23. “If you lose hope, somehow you lose the vitality that keeps moving, you lose the courage to be, that quality that helps you go on in spite of it all.  And so today, I still have a dream.” – Martin Luther King Jr.
  24. “This new day is too dear, with its hopes and invitations, to waste a moment on the yesterdays.” – Ralph Waldo Emerson
  25. “A leader is a dealer in hope.” – Napoleon Bonaparte
  26. “Hope is like the sun, which, as we journey towards it, casts the shadow of our burden behind us.” – Samuel Smiles
  27. “Learn from yesterday, live for today, hope for tomorrow.  The important thing is not to stop questioning.” – Albert Einstein
  28. “You are not here merely to make a living.  You are here in order to enable the world to live more amply, with greater vision, with a finer spirit of hope and achievement.  You are here to enrich the world, and you impoverish yourself if you forget the errand.” – Woodrow Wilson
  29. “Where there’s tea there’s hope.” – Arthur Wing Pinero
  30. “Each time a man stands up for an ideal, or acts to improve the lot of others, or strikes out against injustice, he sends forth a tiny ripple of hope, and crossing each other form a million different centres of energy and daring, those ripples build a current that can sweep down the mightiest walls of oppression and resistance.” – Robert Kennedy
  31. “You may not always have a comfortable life and you will not always be able to solve all the world’s problems at once, but don’t ever underestimate the importance you can have, because history has shown us that courage can be contagious and hope can take on a life of its own.” – Michelle Obama

Hope

It’s a powerful thing, hope. It makes us keep fighting when we feel like it isn’t worth it, just in case it is, or try a new medication when there is no guarantee it will work. Sometimes you hate it, because you are terrified about the despair you feel when your hope isn’t borne out. I think this makes hoping brave, because we do it despite that fear.

In the spirit of hoping, I’ve been writing a quote about hope in my diary each day this week. I want to share them with you to start this year off with some positivity, because what says “hope” more than a new year?

1) “I hope that in this year to come, you make mistakes. Because if you are making mistakes, then you are making new things, trying new things, learning, living, pushing yourself, changing yourself, changing your world. You’re doing things you’ve never done before, and more importantly, you’re doing something.” – Neil Gaiman

Now, being me, I do have a problem with this quote, because I think it veers close to “you have to do something to mean something” territory, which I think it just wrong. People have inherent value. However, it does very much embody the spirit of the new year, which is that sense of “now I will achieve something.” Taken with a grain of spoonie salt, I also think it is a valuable reminder that we never stop learning, and there is value in each lesson (even the ones that suck to learn). It is an encouragement to do something – anything – to break through the ennui that can come with long-term pain and isolation. And ultimately, I think it places values on our battles and our victories, even the seemingly tiny ones, like getting out of bed when we didn’t think we could.  So, whilst I don’t necessarily want to make mistakes, I do hope I do enough that mistakes are a possibility.

2) “Hope smiles from the threshold of the year to come, whispering, “it will be better.”” – Alfred, Lord Tennyson

I love me some Tennyson. This quote just embodies everything I feel just before the new year comes – this one has to be better.  Maybe it won’t be, but hope thinks it will.

3) ““Hope” is the thing with feathers –

That perches in the soul –
And sings the tune without the words –
And never stops – at all –
And sweetest – in the Gale – is heard –
And sore must be the storm –
That could abash the little Bird
That kept so many warm –
I’ve heard it in the chillest land –
And on the strangest Sea –
Yet – never – in Extremity,
It asked a crumb – of me.”
– Emily Dickinson
Admittedly this is one the longer side, and a poem, but I love Emily Dickinson, and I love this portrayal of hope.  It talks about the value of hope itself: its persistence, its ability to survive even the worst storms, how it comforts us, and how it is always with us.
4) “Hope is being able to see that there is light despite all of the darkness.”  – Desmond Tutu
I don’t think my hope is necessarily as strong as this at times, but at least it is never less than “thinking there possibly could be light at some point.”  That’s a lot less catchy, though.
5) “We must accept finite disappointment, but never lose infinite hope.”  – Martin Luther King Jr.
This one will be most applicable for my religious and spiritual readers, but I couldn’t leave it out because for me it is such a good descriptor of my faith in hard times.  The Bible is pretty clear that this life is going to be full of hardships and woes, sometimes catastrophically so, and often without any reason that we can see.  However, the Bible is also clear that these things do end, and at the conclusion of it all is the reason Christians have hope at all – Jesus and a new, better life with him.  During my darkest times, even if the rest of my life looks like a barren, careerless, pointless, painful mess, at least I can set my eyes on that.
6) “There never was a night or a problem that could defeat sunrise or hope.”  – Bernard Williams
Night is so often used as a metaphor to explain away our problems – we all have to go through dark periods, darkest just before the dawn, etc etc – but what I like about this quote is that it isn’t saying sunrise brings a solution.  It’s just saying that hope is persistent.  Even when problem after problem tells us we shouldn’t hope, it comes back like the dawn each time.
BONUS QUOTE:
There have only been six days since the new year but you get a bonus one anyway because I’m benevolent like that.
7) “Though hope is frail, it’s hard to kill.”  – When You Believe, The Prince of Egypt
If you haven’t seen the movie Prince of Egypt, you should.  The soundtrack is great and it is the grittiest, most realistic portrayal of Exodus I’ve ever seen.  Far more so than the movie Exodus, which I thought was fairly bad.  I digress.
This song is sung as the Hebrews flee Egypt.  Their people have been slaves for generations.  The Egyptians have been cracking down on them, raising the quotas of bricks they must produce and reducing their materials.  One random who used to be a prince has shown up out of the desert and said, “worry not, pals, God’s going to release you.”  They’ve had no hope for years, and this is a pretty slim one.  Now it’s come true and they are heading out into the desert with only what they can carry, amongst them children and the elderly, and they will soon have half the Egyptian army on their tail.  It’s a time with not a lot of hope, but it’s all they’ve got, and the song is just excellent.  I’ll post the lyrics below, but first watch this incredibly low-resolution video to hear it and see it in all it’s glory:
If you want a faithful lyrical version, Celtic Woman do a lovely one.  If you want a less faithful one, Mariah and Whitney also have a version.
Lyrics:
[MIRIAM]
[Verse 1]
Many nights we’ve prayed
With no proof anyone could hear
In our hearts a hopeful song we barely understood
Now we are not afraid
Although we know there’s much to fear
We were moving mountains long before we knew we could

[Chorus]
There can be miracles when you believe
Though hope is frail it’s hard to kill
Who knows what miracles you can achieve
When you believe, somehow you will
You will when you believe

[TZIPPORAH]
[Verse 2]
In this time of fear when prayer so often proved in vain
Hope seemed like the summer birds
Too swiftly flown away
Yet now I’m standing here

[MIRIAM]
Now I’m standing here

[TZIPPORAH]
With heart so full I can’t explain

[MIRIAM & TZIPPORAH]
Seeking faith and speaking words I never thought I’d say

[Chorus]
There can be miracles when you believe
(When you believe)
Though hope is frail it’s hard to kill
(It’s hard to kill)
Who knows what miracles you can achieve
(You can achieve)
When you believe, somehow you will
You will when you believe

[Bridge]
[HEBREW CHILDREN]
Ashira l’adonai; ki gaoj ga-ah
Ashira l’adonai; ki gaoj ga-ah
Mi chamocha baelim adonai
Mi kamocha nedar ba kodesh
Nachita v’chas-d’cha am zu ga-alta
Nachita v’chas-d’cha am zu ga-alta
Ashira, ashira, ashira

Ashira l’adonai; ki gaoj ga-ah
Ashira l’adonai; ki gaoj ga-ah
Mi chamocha baelim adonai
Mi kamocha nedar ba kodesh
Nachita v’chas-d’cha am zu ga-alta
Nachita v’chas-d’cha am zu ga-alta
Ashira, ashira, ashira!

[Chorus]
[ALL]
There can be miracles when you believe
Though hope is frail it’s hard to kill
(It’s hard to kill)
Who knows what miracles you can achieve
(You can achieve)
When you believe, somehow you will
Now you will
You will when you believe
(When you believe)

[MIRIAM & TZIPPORAH]
You will when you believe.

So, go forth into the new year with fresh hope, my friends.  You never know what this one holds.

10 Brilliant Quotes about Endometriosis

I’d like to finish the month of July (my first month of serious blogging) with a lighter post.  Well, lighter in the sense that it isn’t factual.

As I’ve mentioned previously, I’m a Pinterest addict.  I don’t know what about it I enjoy so much, but I do.  And I have a board specifically for endometriosis.

That board is partly tips, but mostly quotes about endo and chronic illness, ranging from sassy to depressing.  I want to share ten of my favourites for this month below.

 

1)  “It never occurred to me that one day I would wake up sick and never get better.”

Wake Up Sick.jpg

This one hit me hard.  Coming to terms with what “chronic illness” – that I have this for life and can literally never get rid of it – was one of the hardest aspects of my diagnosis.  It’s really overwhelming, but this quote catches that shock and grief very simply.

 

2)  “Yes, hello. I’d like a refund on my body.  It’s kinda defective and really expensive.”

Chronic Illness.jpg

Gosh, yes.  This is not the body I asked for!  Sometimes it feels like it’s far more trouble than it’s worth.

 

3)  “Sick Girl Problem #19: Feeling incredibly guilty about being sick & how it effects those around me.” 

Sick girl problem 19.jpg

It can be really hard feeling like a burden on other people, and it really does create a lot of guilt.  You can’t do it alone, but you really wish you could.

 

4)  “Yeah, I’m hurting.  But on goes the mascara and lipgloss.  That’s right.  I’ll be the prettiest wreck you’ve ever seen!” 

Pretty Wreck.jpg

Makeup isn’t for everyone, but for me it can be a real mood booster.  When I’m sick, I tend to look it.  When I see myself looking sick, I feel worse.  Slap some makeup on and I not only feel like I made an effort and achieved something, but I like the way I look more and so I feel a bit better.

 

5)  “If you don’t find a way to deal with your demons, your demons will find a way to deal with you.” 

Demons.jpg

In other words, sink or swim.  Fighting against endometriosis is incredibly hard, but you have to do it anyway.

 

6) “Endo Belly” (a picture of Violent Beauregard from the 1971 movie Willy Wonka and the Chocolate Factory blown up into a ball after eating faulty chewing gum).

Endo Belly Blue.jpg

I mean, yeah.  That’s what it feels like.

 

7)  “Sometimes suffering is just suffering.  It doesn’t make you stronger.  It doesn’t build character.  It just hurts.” 

Suffering.jpg

This is really important.  Too often pain is not something that builds you up or makes you better, particularly when it is inescapable and relentless as only chronic pain can be.  Instead, it’s just grinding you down.  You don’t have to be able to make a positive out of the negative.  You can acknowledge that it just plain sucks.

 

8)  “Tired of doctors.  Tired of pain.  Tired of pills.  Tired of stress.  Tired of suffering.  Tired of fatigue.  Tired of always being sick.” 

Tired of.jpg

Because endometriosis is tiring.  Trying to deal with each day in an exercise in exhaustion.

 

9)  “When I am resting because my body is weak, I need to remember that I’m not wasting the day doing nothing.  I’m doing exactly what I need to do.  I’m recovering.”

Resting.jpg

This is a really important reminder for me, because I HATE just lying around not doing anything.  It’s boring and I feel like I’m a waste of space when I’m going it.  I need to keep telling myself that I’m not, but if I keep pushing myself, I soon will be because I’ll be incapable of anything.

 

10)  “Me: I need to do a thing.  Body: You did a thing yesterday.  That’s enough things.”

Doing things.jpg

It’s so true.  I made pancakes today, so I need a day off to recover from standing up to do it.  It’s ridiculous, but unfortunately body is the boss.

 

What quotes have you seen that made you laugh, cry, or go, “Wow.  True”?  Share your favourites below.  Also, drop your pinterest names or boards and I’ll follow you!  You can follow mine here: https://www.pinterest.com.au/bubblesinthebrain/